My daughter is 14 months old and was born with a severe birth defect. She will never live a normal life. She has 10q micro deletion on her chromosome 10. We have 16 hours a day of nursing and she lives on a ventilator 24/7. She doesn’t move, at all. She’ll never be able to move, talk, sing, play, dance, anything. We were in the NICU for 9 mos. We have to share her with the nurses that “live” at our home and – its too much to handle sometimes.
I also am pregnant and just found out that this new daughter of mine will inherit the same gene deficiencies that my 14 month old has. Another baby on life support for the rest of her life. I don’t know what to do. I cringe and cry at the thought of having to get an abortion, but I don’t know how we’ll be able to live with 2 sets of nurses and 2 daughters on life support. I just don’t know what to do.